Kelli Frazier (2 years old) was diagnosed with Metachromatic Leukodystrophy (MLD) which is an inherited, severely debilitating fatal disease that affects nerves, muscles and other organs. There is no cure for MLD. Kelli is already symptomatic, therefore research does not support any type of transplant. Doctors can only treat her symptoms as they develop/progress. Her doctor predicts her survival rate to be a few months to a year and a half

For more information please go to Keli Frazier web site

Tyler Flowers (1 year old) of Pinetops, NC has been selected to receive the proceeds to offset medical expenses. Tyler has been placed on the transplant list in April 2006. His is waiting for a small
bowel and liver transplant.

Sarah Harris (3 years old) of Tarboro, NC has been chosen to receive the funds for 2005. She is the daughter of Sharon Harris and was born with Alagille Syndrome, a disease that affects the liver and other organs. The disease, which is usually inherited and present at birth, prevents drainage of the bile, causes the discoloration of skin and stunts growth. Sarah received a liver transplant from the Children’s Hospital of Pittsburgh, PA on January 5, 2005. Sarah has had several setbacks, among which was a bile duct problem (which required surgery) and two bouts with pneumonia and respiratory distress.

To learn more about Sarah Vist Sarah's Web Site.

Degan Miles was chosen to receive the funds for 2004. Degan (8 months old) has Krabbe Disease and was at Duke Children's Hospital in Durham, NC. Krabbe Disease is a rare, degenerative disorder of the central and peripheral nervous system that is characterized by the presence of globoid cells (cells that have more than one nucleus) in demyelinated portions of the brain. It is one of a group of genetic disorders called the leukodystrophies. These diseases cause imperfect growth or development of the myelin sheath, the fatty covering that wraps around and protects nerve fibers in the brain. Degan received a stem cell transplant on July 4, 2003.

Joshua Trueblood received some of the funds raised on 2004. He was going to Jackson Memorial Hospital in Miami, Florida where he received a multi organ transplant in 2003 due to short gut syndrome. Through the 5 organ transplant Joshua has had many setbacks such as breath and digestion problems.

Christian Dean Johnston was the recipient of 3 different transplants at Jackson Memorial Hospital in Miami, Florida. The first intestinal transplant was in 1997 at the age of 2 years old. The golf tournament was started for him in 1998 to help his family in their time of need to offset the medical expenses. Through the years Christian had many setbacks including another transplant in 2001. Christian second transplant did not go very well. With the organ transplanted and his other organ beginning to fail, he received an 8 organ transplant in 2003. Due to other complications Christian Dean Johnston passed away at the age of 8 years old in August of 2003. With his memory, we kept the golf tournament going to help other families in their time of need.

To read more about how this tournament start and about Christian please vist our history page!